Wednesday, 2 November 2016

7 POINTS ON THE HIGH COURT’S REFUSAL TO FORCE A WOMAN TO UNDERGO A C-SECTION AGAINST HER WILL

These points relate to the case of HSE vs B. The in-camera reporting of the case was lifted on 2nd November 2016, over a month after the original case was heard. The case relates to the HSE who took a heavily pregnant woman, Ms B to the High Court to seek an order for a forced sedation and c-section against the woman’s consent.
  1. This case is clear proof of what AIMS have been saying for years now; that the HSE coercively use the existence of the 8th amendment to the Irish Constitution against birthing women. The fact that they tried to prevent their defeat in this case being publicly reported is cause for ongoing concern about their continued desire to bring further cases of informed refusal to the High Court.
  2. That this woman had the support and strength to go and vindicate her right to informed refusal in the High Court whilst heavily pregnant makes her very unusual.  Ms. B deserves our very great thanks for publicising this practice by the HSE.
  3. Whilst a case with a formal judgement such as this is unusual, AIMS Ireland are aware of many cases in which heavily pregnant women have been threatened “with the guards coming to get them” if they don’t turn up for their scheduled induction. In fact a cohort of women reported such statements are regular commentary at antenatal classes at one particular hospital. AIMSI can also confirm that there are other women who felt they had no other option than to be coerced into a section they did not freely consent to.The fear of being taken to the High Court and being sedated for forced obstetric procedures is usually enough to ensure that women comply with whatever the HCP may be suggesting whether it is evidenced based or not.
  4. AIMS Ireland are aware of these situations in a variety of settings and geographic locations. It is not limited to large tertiary referral hospitals or to smaller units. It is endemic and a result of article 40. 3. 3 which informs the HSE National Consent Policy, enabling High Court Actions to be taken against pregnant women who exercise their right to informed refusal of medical treatment.
  5. The ruling makes clear that the 8th amendment can be, and is used against women in continued pregnancy and birth. It finds in this particular instance that the threat to the baby’s life is not great enough to warrant forcibly sedating and sectioning a woman, but it gives us no examples of when that threat might be great enough. This leaves the door open to the HSE to continue to interpret this “risk” as they please. It enables women to be forced into processes and procedures such as CEFM (Continuous Electronic Fetal Monitoring) which the evidence base acknowledges does not improve outcomes for mothers or babies.
  6. The judge’s comments on Ms. B having to bear the whole financial weight of any potential care baby B would have needed shines a light again on an issue that AIMS Ireland have repeatedly highlighted; that of babies who need lifelong care from injuries acquired at birth only being financially supported if someone is found to be ‘at fault’ for those injuries.AIMS Ireland have long argued that instead of the State Clinical Indemnity Scheme  paying out huge sums in compensation and families needing to pursue litigation, a care fund should be established, from which monies can be allocated for the lifelong care of any child injured at birth without the need to assign blame.
  7. Ms. B’s decision to request a c section despite having been vindicated in her right of refusal goes to prove AIMS Ireland’s position that women’s experiences of their care are differentiated entirely by whether their autonomy is respected or not, rather than what form their birth actually takes. It is clear that Ms. B did not want to avoid a section at all costs including her own health and the health of her baby, but instead to be supported by her healthcare providers in her decision to attempt a trial of labour as far as she felt was safe, with the most information and support she could obtain available to her. AIMS Ireland is delighted that Ms. B fought and won this right for herself, and by extension all other women in Ireland in her position.
Ultimately this case highlights supporting a woman's right to weigh risks for and against each care option and make the best decisions for her in her current circumstances taking on board her medical history. The unit refused to engage and instead decided threatening her & taking her to court was the best option. And they were backed by our National Health Service under Constitutional personhood law. The foetus, like many other cases, had its own legal representation against its mother.
If we want to make it about "risk", if discussing the 3% chance of uterine rupture, we must discuss all the risks and that it's up to the woman to weigh them out. There are real and substantial risks in repeat Caesarean; most severe maternal morbidities in Ireland (the near misses) are involving repeat Caesarean section. There are no absolutes in maternity care, it's about balancing risk and making the decision you feel safest in *at that moment * with scope to revisit the issue if medical indication arises. As in this case. The woman requested a Caesarean when she no longer felt vbac was a safe option. Women are not stupid. Women do not take risks. They make good decisions for themselves and their baby. They need to be supported, not violated and threatened.

AIMSI points: HSE v B

These points relate to the case of HSE vs B. The in-camera reporting of the case was lifted on 2nd November 2016, over a month after the original case was heard. The case relates to the HSE who took a heavily pregnant woman, Ms B to the High Court to seek an order for a forced sedation and c-section against the woman’s consent.
  1. This case is clear proof of what AIMS have been saying for years now; that the HSE coercively use the existence of the 8th amendment to the Irish Constitution against birthing women. The fact that they tried to prevent their defeat in this case being publicly reported is cause for ongoing concern about their continued desire to bring further cases of informed refusal to the High Court.
  2. That this woman had the support and strength to go and vindicate her right to informed refusal in the High Court whilst heavily pregnant makes her very unusual.  Ms. B deserves our very great thanks for publicising this practice by the HSE.
  3. Whilst a case with a formal judgement such as this is unusual, AIMS Ireland are aware of many cases in which heavily pregnant women have been threatened “with the guards coming to get them” if they don’t turn up for their scheduled induction. In fact a cohort of women reported such statements are regular commentary at antenatal classes at one particular hospital. AIMSI can also confirm that there are other women who felt they had no other option than to be coerced into a section they did not freely consent to.The fear of being taken to the High Court and being sedated for forced obstetric procedures is usually enough to ensure that women comply with whatever the HCP may be suggesting whether it is evidenced based or not.
  4. AIMS Ireland are aware of these situations in a variety of settings and geographic locations. It is not limited to large tertiary referral hospitals or to smaller units. It is endemic and a result of article 40. 3. 3 which informs the HSE National Consent Policy, enabling High Court Actions to be taken against pregnant women who exercise their right to informed refusal of medical treatment.
  5. The ruling makes clear that the 8th amendment can be, and is used against women in continued pregnancy and birth. It finds in this particular instance that the threat to the baby’s life is not great enough to warrant forcibly sedating and sectioning a woman, but it gives us no examples of when that threat might be great enough. This leaves the door open to the HSE to continue to interpret this “risk” as they please. It enables women to be forced into processes and procedures such as CEFM (Continuous Electronic Fetal Monitoring) which the evidence base acknowledges does not improve outcomes for mothers or babies.
  6. The judge’s comments on Ms. B having to bear the whole financial weight of any potential care baby B would have needed shines a light again on an issue that AIMS Ireland have repeatedly highlighted; that of babies who need lifelong care from injuries acquired at birth only being financially supported if someone is found to be ‘at fault’ for those injuries.AIMS Ireland have long argued that instead of the State Clinical Indemnity Scheme  paying out huge sums in compensation and families needing to pursue litigation, a care fund should be established, from which monies can be allocated for the lifelong care of any child injured at birth without the need to assign blame.
  7. Ms. B’s decision to request a c section despite having been vindicated in her right of refusal goes to prove AIMS Ireland’s position that women’s experiences of their care are differentiated entirely by whether their autonomy is respected or not, rather than what form their birth actually takes. It is clear that Ms. B did not want to avoid a section at all costs including her own health and the health of her baby, but instead to be supported by her healthcare providers in her decision to attempt a trial of labour as far as she felt was safe, with the most information and support she could obtain available to her. AIMS Ireland is delighted that Ms. B fought and won this right for herself, and by extension all other women in Ireland in her position.
  8. Ultimately this case highlights supporting a woman's right to weigh risks for and against each care option and make the best decisions for her in her current circumstances taking on board her medical history. The unit refused to engage and instead decided threatening her & taking her to court was the best option. And they were backed by our National Health Service under Constitutional personhood law. The foetus, like many other cases, had its own legal representation against its mother.
    If we want to make it about "risk", if discussing the 3% chance of uterine rupture, we must discuss all the risks and that it's up to the woman to weigh them out. There are real and substantial risks in repeat Caesarean; most severe maternal morbidities in Ireland (the near misses) are involving repeat Caesarean section. There are no absolutes in maternity care, it's about balancing risk and making the decision you feel safest in *at that moment * with scope to revisit the issue if medical indication arises. As in this case. The woman requested a Caesarean when she no longer felt vbac was a safe option. Women are not stupid. Women do not take risks. They make good decisions for themselves and their baby. They need to be supported, not violated and threatened.
AIMSI Press release:
http://aimsireland.ie/statement-from-aims-ireland-on-the-lifting-of-in-camera-status-in-the-case-of-mother-b-vs-hse-heard-in-the-high-court-dublin-on-30th-september-2016/

Irish Times reporting:
http://www.irishtimes.com/news/crime-and-law/in-camera-judgement-released-in-case-where-hse-sought-surgical-delivery-1.2852130

Replacing the 8th won't address autonomy issues.

Article in Today's Irish Times looking at Constitutional law and challenging the view that the 8th Amendment must be replaced if repealed.

This is an incredibly important issue and one that has been continuously missed in the conversation from many politicians and many in the Irish media with regards to Repeal the 8th.

AIMSI members voted unanimously for Repeal the 8th without replacement due to the legal ramifications personhood laws have on bodily autonomy on all health care options and full range of maternity services once a person becomes pregnant.  All care options in continuum of pregnancy are within the scope of "maternity services" and those utilising services in Ireland deserve a full range of evidence based care options and full duty of care. Including access to abortion, pregnancy screening, evidence based antenatal/labour/birth/postnatal, options on place of birth/lead care provider, maternal mental health services,  bereavement, hospice, and full recognition and guidance of principals of informed decision making, to consent or decline, like our EU / UK counterparts.

Repealing the 8th Amendment and replacing it with similar legislation, giving equal  rights to the foetus in some or all instances, results in no change for pregnant women/people in happily continued pregnancy.  With shared rights a pregnant women/person is automatically reduced in capacity - in the ability to make an informed decision, (consent to/or decline ) in care options and interventions during continued pregnancy, labour, and childbirth.

The HSE directly cites the 8th as a barrier to consent in continued pregnancy and childbirth. Further, The Capacity Act legislation outlines the importance of Advanced Health Care Directives, as being legally binding to ensure patient wishes, but outlines that these directives can be overruled in the case of pregnancy.

Pregnant women/people should be the lead decision maker on their care - where, how, with whom they give birth. In no other realm of health is a person with full capacity's right to bodily autonomy diminished.

Bodily autonomy is the cornerstone of medical ethics. Removal of this right in the instance of pregnancy is discrimination. Removal of choice is never best practice.

This conversation must be opened to include continued pregnancy and the dangerous ramifications the 8th has in maternity care.

From Article:
"The people should not be asked to constitutionally enshrine a particular set of restrictions on abortions, but only to remove a constitutional impediment to legislative reform."

Irish Times: http://www.irishtimes.com/opinion/there-is-no-reason-why-we-can-t-simply-repeal-the-eighth-amendment-1.2850568

"There is no reason why we can’t simply repeal the Eighth Amendment" 


Friday, 12 August 2016

Bereavement Standards - Terminology Clarification on Fatal Foetal Abnormality

This photo, taken by an AIMSI committee member, is from the Bereavement Standards Following Pregnancy Loss and Perinatal Death which was launched on August 10, 2016 and attended by AIMSI.

Contrary to belief within some circles, the term 'fatal fetal abnormality/anomaly' IS IN THE DOCUMENT, where it is explained (see photo) that there is no legal, medical, ethical or 'right' way to refer to these tragic cases. The point was also made by each of the speakers (Dr Ciaran Browne, Mr Tony O'Brien & Minister Simon Harris) that there is no symbolism in the language used and the terms are interchangeable and self determined. Indeed, each of the speakers used various terminology throughout the launch.

Hope this clears up any misinformation. ‪#‎bereavmentstandards‬ ‪#‎FFA‬ ‪#‎tfmrireland‬

Thursday, 11 August 2016

Human Rights for Jess #humanrightsforjess #repealthe8th

This morning AIMS Ireland posted this photo with the caption:

"Spotted in Dublin this morning.... #repealthe8th #humanrightsforjess"
 
A bit more on Jess...The 8th Amendment affects pregnant people who want to be pregnant as well as those who do not. Jess's right to informed consent and informed refusal is removed due to the 8th Amendment. The National Consent Policy of Ireland directly cites the 8th Amendment as a barrier to informed consent/refusal in pregnancy, labour, and childbirth. Jess should be supported to enjoy the same freedom to consent which is outlined (and protected) to all other non-pregnant people in Ireland. Jess's ability to informed decision making - to make the best decision for her & her baby in their specific circumstances in pregnancy & childbirth has been removed from her. AIMSI speak to pregnant people daily whom have had their rights removed. Human rights in childbirth is real. ‪#‎humanrightsforjess‬ ‪#‎repealthe8th

More on Human Rights violations in Ireland as a ramification of the 8th Amendment:
 


Full article by AIMSI Secretary Sinead Redmond  HERE
 
 

Sunday, 24 April 2016

AIMSireland issues Proclamation to the Birthing Women of Ireland

AIMSIreland Proclamation


This proclamation from AIMSIreland to the Birthing Women of Ireland is to mark the centenary of the original Irish Proclamation which was read from the GPO 100 years ago today. The original proclamation strove to ensure equal rights for all the future citizens of Ireland, a worthy aspiration that has yet to be fully realised.

There are many areas of maternity care which are not equitable, not evidenced based and in which women and the babies they are birthing could be better served. Under the 8th amendment to the Irish Constitution women are not treated as equal citizens once they become pregnant. They surrender bodily autonomy to the State and as such are not free. AIMSIreland strives to fight these inequities and to ensure that all women who birth in Ireland have the right to safe, compassionate, evidenced based care and bodily autonomy.

Watch our Proclamation video here

AIMSIreland to the Birthing Women of Ireland


WOMEN of Ireland: In the name of all those women who have gone before you and of the dead generations from which you draw your strength to birth, AIMSIreland summons you to our Charter for Safe Maternity care and strikes for the freedom of all women to choose, to be fully informed and to be treated with compassion and dignity in our maternity services.

Having organised and trained her advocates through her outspoken organisation; and through other Irish voluntary birth advocacy organisations, having resolutely waited for the right moment to reveal itself, AIMSIreland now seizes that moment, and supported by her sister global advocates, but relying in the first on her own strength, she strikes in full confidence of victory.

We declare the right of the women of Ireland to the ownership of their bodies and to the unfettered control of their destinies, to be sovereign and indefensible. The long usurpation of that right by the state and health care professionals has not extinguished the right, nor can it ever be extinguished except by the destruction of all women in Ireland. In every generation women of Ireland have asserted their right to bodily autonomy and sovereignty; countless times during the past hundred years they have asserted it collectively and individually. Standing on that fundamental right and again asserting it on social media in the face of the world, we hereby proclaim the bodies of the birthing women of Ireland as independent and autonomous and we pledge our lives and the lives of our fellow advocates to the cause of its freedom, of its welfare, and of its equality among citizens.

AIMSIreland hereby claims the allegiance of all women of Ireland to call for improved maternity care. We demand equal rights and equal opportunities for all women in birth, and declare our resolve to pursue the happiness and prosperity of all birthing women, cherishing all of the birthing women of the nation equally, and oblivious of the differences carefully fostered by the State, which have divided a minority from the majority in the past.

Until our advocacy has brought the opportune moment for the establishment of a safe compassionate dignified maternity service we will carry the mantle of ceaseless questioning.

We place the cause of Improving the Irish Maternity Services under the protection of the moral high ground Whose blessing we invoke upon our campaign and we hope that no one who serves that cause will dishonour it by cowardice.

In this supreme hour AIMSIreland must, by its valour and determination, and by the readiness of its committee and membership to work voluntarily for the common good, prove itself worthy of the august destiny to which it is called.

Signed on behalf of AIMSIreland
Krysia Lynch
Breda Kearns
Jene Hinds Kelly
Sinead Redmond
Helen Guinane
Lucy Peprah
Barbara Western
Rebecca Hegarty
Nuala Hoey
Lisa Finnegan
Edel Quirke
Aisling McCarthy

Wednesday, 27 January 2016

Launch of the Maternity Strategy for Ireland 2016-2026

The Association for the Maternity Services Ireland (AIMSI) welcomes the Maternity Strategy for Ireland 2016 - 2026

www.aimsireland.ie

For more information call Krysia Lynch 0877543751

AIMSI welcomes the Maternity Strategy for Ireland launched today 27th January 2016.  by Minister Leo Varadkar.  AIMSI was delighted to be able to participate in the steering group for the last nine months via its Chair Dr.Krysia Lynch.

The Maternity Strategy when implemented will offer women and their families increased choices in maternity care. Women who are experiencing a normal straightforward pregnancy will have the option of birthing at home, in an alongside birth centre or in a specialist birth centre. The first two options will offer women with a normal pregnancy a much increased chance of a normal birth, with interventions not being routine but only carried out on request or necessity, and where the lead carer will be a midwife.

Women who are of medium risk or of high risk will not have any increased choices, and will birth in an obstetric led specialist birth centre. AIMSI are disappointed that for women who have only transient risks or marginal increased risks there will be no choice in care setting as there is for example in the recently launched GAIN guidelines in Northern Ireland. AIMSI are further disappointed that free standing birth units are not recommended in this strategy, even though the evidence for their safety is stronger than for home birth, which the Strategy does recommend, and even though there was a clear overwhelming demand for in the public consultation.

AIMSI welcomes the Minister's comments on perinatal mental health at the launch of this strategy and the need for increased service provision in this area that the strategy recommends. AIMSI also welcomes the increase in a community midwifery service that this Strategy recommends for antenatal, postnatal and intrapartum care as being cost effective, designed to meet the growing demand for women to have more care within the community and cognisant of the views of the many service users who took part in the consultation.

AIMSI welcomes the increased provision that the Strategy recommends for information and audit. The strategy recommends that evidenced based information be made available in a one stop shop for for women and that women be advised of their options at the start of their pregnancy using evidence rather than clinician preference. The Strategy also recommends that HIQA will annually audit the maternity services, which AIMSI welcomes.

The Strategy recognises the effect of birth trauma on women and the Minister made reference to this in his speech at the launch. AIMSI are delighted to hear that there will be recommendations to assist women who experience birth trauma, as so many of our calls come from women who have had traumatic experiences in our maternity services.

AIMSI are delighted to see that the Strategy recommends the provision of alongside birth centres even in smaller units. AIMSI also welcomes the provision made for smaller units to comply with dedicated home from home rooms to act as alongside birth settings with midwives as lead carers until an alongside birth centre can be built as this will ensure continued provision of maternity services in rural areas.

AIMSI welcomes the importance that this Strategy places on breastfeeding and its role in life long health. We welcome the recommendations that all hospitals achieve Baby Friendly Status and that women should have free access 24/7 to lactation consultants within hospital settings and also free access in the community.

Finally, AIMSI welcomes the provision made for service user representation in the implementation of the Strategy and in continuing review of the maternity services